Ethan Heiken was like any other happy energetic two-year-old boy, but near the end of July, his parents noticed something wasn't' right with their son. Ethan had a droopy face, swollen belly and had been vomiting, so parents Joe and Christy Heiken took Ethen to the hospital.
After a series of tests, Ethan was diagnosed with a rare disease called Denys-Drash Syndrome.
-Drash syndrome (DDS) is characterized by abnormal kidney function (congenital nephropathy), a cancerous tumor of the kidney called Wilms tumor, and disorders of sexual development in affected males. Only 150 cases have been diagnosed worldwide.
To prepare for an operation, 2-year-old Ethan had to endure 6 weeks of chemotherapy in order to decrease the size of the tumor on his kidney. On September 13th, he underwent surgery to remove the kidney as well as his testicles. The tumor on his kidney was larger in size than that of the surgeons hand.
Currently, Ethan is having to undergo 6 sessions of radiation and 19 weeks of chemotherapy. Upon completion, he will have his other kidney removed so that may prevent any additional tumors from forming. It will take two cancer-free years in order for Ethan to be put on a kidney transplant list. Until that happens, he will remain on dialysis.
TQLA SOUTHWESTERN KITCHEN in Mesa, AZ will be holding a benefit for Ethan Heiken on Tuesday, October 22nd, from 11am-10pm, in hopes of raising money to help with the family's medical expenses. TQLA will also donate 25% of all food and drink sales for the entire day. There is also a Silent Auction from 5-7pm.
For those unable to attend the TQLA event, donations are being taken by Bank of America - in care of Ethan Heiken - account # 457028302812
FOR ADDITIONAL INFORMATION
please contact Fawn Williams
Phone: (480) 202-2357